Cayden update

We spent the morning at Primary Children's Hospital with Cayden. How lucky we are to have such a great hospital and specialists so close. While we were in the waiting room, there was a mother with a girl there that had flown in from Northern Idaho for an appointment. We just had to drive through Monday morning rush hour. Every time I walk in that hospital I have a lump in my throat as you see so many sweet little kids who are suffering with major health issues. For me it was sobering knowing that you don't get sent there unless it is serious.

The Neurologist and his Physicians assistant that we saw today were awesome. They spent so much time with us explaining things and answering all of our questions. They really seemed sincere and very approachable. Thank goodness. They did find some problems on his EEG, which means he is high risk for having another seizure. They can't clinically call it Epilepsy unless he meets the criteria of 2 seizures and the abnormal EEG. Since he has only had one seizure (that we can document) they won't diagnose that. So the dilemma is do you watch and wait for another seizure or start the anti seizure medicine and hope that forstalls him having another one. The doctor recommended the medication so that is what we have decided to do.

The first 6 months after a seizure you are at the greatest risk of having another one. Also it takes the medicine 6 weeks or so to be at full strength. So for the time being he still has to be very careful in what he does. Especially no swimming. There are side effects that we have to watch for, but overall it is manageable. He will have to be on the medication for 2 years and then they will wean him off. They say some kids outgrow the seizures. So that is what we hope for. Overall it could certainly be a lot worse. But definitely not fun. Hopefully the side effects will be minimal. Cayden is awesome and such a trooper. I think for him he is just worried about possibly having one in front of others that may not understand. Kids can be pretty cruel. My worry is that, plus so many others of when and where it could happen again. I am an overprotective mother as is. I have a brother with Epilepsy, so I know the struggles he has had. Thank goodness for modern medicine and that it isn't life threatening. I will just have to stay calm

On a funny note, they told Cayden no baths, just showers. I know he was heartbroken about that. No long hot bubble baths with all his action figures anymore. Ohh Nooo!!